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Landon Tyler 06/27/2007 to 01/06/2008

06/27/2007 to 01/06/2008

Landon was born with Pentalogy of Cantrell, a rare birth defect that consist of a Congenital Heart Defect, more commonly Tetralogy of Fallot, and a Congenital Diaphragmatic Hernia, and an Omphalocele (this is a hole in the abdomen exposing several organs), in Landon's case his Liver and Intestines were exposed in the Omphalocele. He was truly our miracle from God, prior to Landon's diagnosis of this rare defect, there had only been 50 cases ever reported in the world. Of the 50 cases reported non of them had survived longer than 48 hours after birth. Our Hero survived for 6 1/2 months and died from complications of having a Tracheotomy put in. He had won the battle with this rare defect with his courage and strength and willingness to survive. He was a real Hero and a true miracle from God. He taught many people so much about life and strength and courage with his story. He wrote his own pages in the medical journals, as his doctors put it.


He went through 6 surgeries to repair the Omphalocele and the Diaphragmatic Hernia in the first 2 months of his life beginning at 2 days old.


At 3 months old he underwent Open-Heart Surgery to correct the Heart Defects. After his heart surgery his kidneys failed and he was diagnosed with Nephrotic Syndrome and was put on a continual dialysis and it was thought that eventually he would have to have his kidneys removed and a double kidney transplant when he turned 18 months old. Then just as suddenly as they stopped working his kidneys began to function again about 2 weeks prior to his death. He was taken off dialysis and was being prepared to come home.


They did a final surgery on him on 01/04/2008, to insert a Tracheotomy so that we could bring him home and he would be more mobile to bring home. The surgery went well and there were no complications. On Sunday morning, 01/06/2008, he suddenly stopped breathing, his Tracheotomy had dislodged cutting off his air supply causing him to go in to cardiac arrest. They were able to clear his airway and get a slight heart beat going again, but the trauma from it all was just too much for his little heart to take and he went back into cardiac arrest and died at 4:50 that morning. His mother, Amber was there with him, along with his Doctors and some of the nurses that had taken care of him for the last six months.


He looked so beautiful and peaceful at his funeral. Rest in Peace Sweet Angel. Always our Hero!

Last Review 06/06/2008
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Information provided by CHD Awareness in PR (Christine Méndez)

Last Review June 2008

 

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