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| 06/27/2007 to 01/06/2008 | |
Landon was born with Pentalogy of Cantrell, a rare birth defect that consist of a Congenital Heart Defect, more commonly Tetralogy of Fallot, and a Congenital Diaphragmatic Hernia, and an Omphalocele (this is a hole in the abdomen exposing several organs), in Landon's case his Liver and Intestines were exposed in the Omphalocele. He was truly our miracle from God, prior to Landon's diagnosis of this rare defect, there had only been 50 cases ever reported in the world. Of the 50 cases reported non of them had survived longer than 48 hours after birth. Our Hero survived for 6 1/2 months and died from complications of having a Tracheotomy put in. He had won the battle with this rare defect with his courage and strength and willingness to survive. He was a real Hero and a true miracle from God. He taught many people so much about life and strength and courage with his story. He wrote his own pages in the medical journals, as his doctors put it.
He went through 6 surgeries to repair the Omphalocele and the Diaphragmatic Hernia in the first 2 months of his life beginning at 2 days old.
At 3 months old he underwent Open-Heart Surgery to correct the Heart Defects. After his heart surgery his kidneys failed and he was diagnosed with Nephrotic Syndrome and was put on a continual dialysis and it was thought that eventually he would have to have his kidneys removed and a double kidney transplant when he turned 18 months old. Then just as suddenly as they stopped working his kidneys began to function again about 2 weeks prior to his death. He was taken off dialysis and was being prepared to come home.
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| Last Review 06/06/2008 | |
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Information provided by CHD Awareness in PR (Christine Méndez) |
Last Review June 2008 |
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